Life With ALS
With Kimberly Atkins
Neuroscientist turned novelist Lisa Genova’s first book “Still Alice” was a bestseller and a movie. Her new book, “Every Note Played,” is about ALS. We’re reading through it. We’re also talking with Nancy Frates, the mother of Ice Bucket Challenge pioneer Peter Frates, and a doctor who treats ALS patients.
This show airs Tuesday at 11 a.m. EST.
Nancy Frates, mother of ALS Ice Bucket pioneer, Peter Frates, (@momfrates)
Mark Ross, neurologist who treats ALS patients at the Mayo Clinic in Arizona.
From The Reading List:
Excerpt of ‘Every Note Played’
Sometimes it’s easier to tell truth in fiction. Lisa Genova has made a career of it. The neuroscientist turned novelist’s first novel “Still Alice” looked at the struggles of Alzheimer’s. This time, she turns her pen to ALS. She tells the tale of a piano virtuoso whose body begins to slowly weaken and fail due to the devastating disease. And she tells it with heart and hope.
This hour, On Point: The story and real life struggles of ALS.
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